Hey everybody, considering I only got around five hours sleep last night I’m feeling pretty good! Hope you’re all doing well. I’m sure most of you are looking forward to the weekend.
I’m on the train again. I seem to love writing during train journeys! Currently on my way to Cheltenham for college this weekend. The reason I go to Cheltenham and not Bristol (where I attend college) is because I’m staying with my friend Stacie. Stacie’s an absolutely awesome girl and in the same class so we travel in together on Saturday and Sunday. The reason I’m heading up a day early is because we have an exam on Saturday morning so we’re hitting the books together. More about lovely Stacie (and not so lovely) exams later..
Today I thought I’d chat about the side effects I personally suffered from whilst on Accutane and after I finished the course of Accutane. For anyone that doesn’t know already, Accutane is an extremely strong medication used for the treatment of Acne. I took a 5.5 month course at 40mg/ day from October 2011 to March 2012 and it changed my life.
If you’d like to know more, please read my posts titled ‘Accutane- The Life Changer PART I and II.’
Accutane creates a strong divide. There are people who believe it saved their life and gave them their confidence back and others, like myself that have had to deal with major health issues since taking this drug. My intention is not to bully people into not taking Accutane but rather encourage them to look at other options. I know there will be some of you reading this that will be like “duh, if I had other options I would try them but I tried cutting out this food and that food and I’ve tried different antibiotics and changing face products etc. and nothing has worked.” Trust me, I understand where you’re coming from and the absolute desperation you’re feeling. I genuinely get it because I myself, have been there.
All I know is, if I could have my time over I would not take Accuatane. If I knew what I knew now, I would have handled the whole situation differently. Then again, I realise everything is simple in hindsight. I have accepted that I was doing my best for what I knew in that moment at that time. I have stopped doing the “if only and what if” and have learned to focus all of my energy on the present which includes my personal recovery and desire to help other people.
In order to clarify a few things I’m going to list all the side effects that I personally suffered with from taking this medication and then give you an overall view as to how I have recovered and healed my body over the past five years.
Side effects that I experienced (mainly after I finished Accutane):
- Dry skin, eyes and hair
- Eczema on face
- Rash on my hands, arms and face
- Facial flushing and a rash like appearance
- Joint pain
- Suicidal thoughts
- Hairloss, seborrhoeic dermatitis and sores on my scalp
- Increased sweating and night sweats
- Temperature regulation issues (too hot or too cold)
- Bloating, constipation and abdominal distension
- Parlour (I looked so pale with a pink tinge to my skin
- Blurred vision
- Constantly swollen lymph nodes
- Facial impetigo
- Staph A infection
- Pain in my spleen and liver area
- Reaccuring conjunctivitis and other infections
- Constantly feeling ‘off’, weak and really ‘under the weather.’
I just want to add that I have had blood tests done with my GP several times over the past few years. The results indicated different things but everything was shrugged off and looked at as an individual symptom. Of course, neither my Dermatologist nor my GP was willing to listen when I told them I knew I was ill as a result of taking Accutane. My Dermatologist told me that the major hairless I experienced was definitely not Acctutane related. Well excuse my language but this is bull***t! He took a scalp biopsy which showed the presence of yeast and fungus (that cause standard dandruff.) So conveniently, I was told I had a fungal infection of the scalp and was given a course of antifungal medication which I (stupidly) took.
Blood tests showed that my thyroid was showing signs of being under active (borderline hypothyroid at that stage) and I was told that perhaps I had ‘post viral fatigue’ by a different GP. The moment I knew I was going to take my health in to my own hands was after a morning appointment with my GP. I remember the day well. Feeling unbelievably out of sorts and not long after returning from South America, I walked with my head low into my doctor’s office. To synopsise the situation, I was given information on Rosacea because apparently I had cured my acne but developed Rosacea instead. I was also told to fill out a depression questionnaire (which, if you haven’t seen one of these are a bit ridiculous.) The reason it’s ridiculous is because the questions ask you to give a number score in relation to a list of different situations or feelings that are part of being human. For example, “Do you feel down sometimes?” Which most people do and it’s hard to choose a number to express the overall situation/ experience you’re having. I can’t remember the others but you get the idea. On top of all of this I was offered anti-depressant medication which I politely declined.
That was a tough morning. Not only was I feeling ruined both physically and mentally but now I felt unheard. Unable to hold the emotion in anymore I burst into tears, I didn’t need the tissue that the doctor passed me as no tears were produced. Imagine that, crying but producing no tears because your eyes are so dry and your tear production has stopped. Something was going to give. I was going to break or I was going to get better. However, I now know I needed to return to my natural, holistic way of looking at health. No more pills, no more quick fixes.
I cried and cried for most of that day. Feeling horrendous, I slept loads as the fatigue was intense and the anxiety, depression and other physical side effects were almost unbearable. It was around this time that I started doing my own research. Bit by bit, I made life changes based on my gut instinct. Obviously, I looked into things thoroughly and weighed up risks, but you need to remember at that point I didn’t have anything to lose. As I said, I will be writing specific blog posts detailing everything I did and what worked for me. It was very much a process of trial, error and lots of learning.
Today, I am so much better. It’s pretty remarkable actually. I’m functioning normally, although I still do a lot to to keep myself balanced and healthy. I also cleanse periodically. My body is so much stronger and my mental state is fantastic, not a hint of anxiety or depression. Obviously I still have tough days, like everyone else and don’t always feel great but this is normal and a part of life.
I believe my success comes down to a few main factors.. Support from my mum and close friends, my own discipline and dedication to healing my body, and a multi-pronged approach to resolving interconnected issues relating to Accutane damage. Basically, I started by working on removing the Accutane residues that remained in my body after treatment, repairing and repopulating my gut with beneficial bacteria, cleansing the liver thoroughly, supporting adrenal and thyroid function, parasite cleansing and removing heavy metals, supporting my immune system and supplementing where necessary.
An important point to make is the fact that not all of my recovery was based on physical practices. True health and vitality occur when all aspects of a person are addressed and balanced: mind, body and spirit. I worked on my mental and emotional health with kinesiology, meditation, emotional freedom technique (EFT) and generally being with people I love and taking some time out.
At this moment in my life, I’m delighted and grateful at how far I’ve come but I’m also far from done. As a matter of fact, I’m just getting started. I have so many goals and aspirations mainly relating to helping others and transforming my situation in order to do good.
My physical health is so much better than it was and I feel a true sense of vitality. Sometimes I feel ‘run down’ and the lymph nodes in my neck swell but that’s usually when I’m cleansing or get a bit stressed with college work etc. I’m able to workout again which is amazing and I’m currently working on developing my physical strength, stamina, building lean muscle and losing a little fat. Being able to complete high intensity workouts again makes me feel strong and balanced. I find it to be both a stress reliever and confidence booster.
Also, I have plans to start a Knowledge To Nourish YouTube channel soon. The time has come to speak out in an honest and personal way. It is not my intention to come be ‘pushy,’ I just long to get this information out there in the hope that someone somewhere can gain something positive from what I’ve learned.
On that note, I’m going to wrap up today’s post and chat more next time.
Thanks for your support and hope you all have a fantastic weekend. Please send me good vibes for my exam on Saturday morning!
11 thoughts on “Accutane- My side effects and overview of my recovery ”
You’re very brave to share all this. Most people wouldn’t have done so. So I commend you for your confidence.
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Thank you so much for taking the time to comment and for your kind words. This has meant so much to me, particularly today- I really appreciate it! 🙂
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Well we girls gotta take care of each other. I’m glad I found your blog. 😊 you’re welcome
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Oh you are lovely! Thank you ❤ You have a very natural way of writing and I'm enjoying your blog too 🙂 Do you have any social media links?
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Thankyou that very kind of you. Yes I have an instagram account with the same username iamthatgirl23 Manal Ahmad.
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You’re so welcome. Great! I’m following you from my personal account. Need to create social media links for the blog soon 🙂
Yes that’s my personal account as well.
Hi. I’ve been taking Curatane (brand name) for a month and a half now. i had the usual side effects like drying of lips and skin, and also had a really bad rash on both hands. I thought they’re expected since the nurse in our clinic told me beforehand. But when I started my 2nd month, I started to feel back pains and pain in my ankles when walking. So naturally, being a nurse myself, I started to be anxious and researched in the internet. I was so shocked about some blogs I’ve read especially concerning the IBM and bone demineralization and muscle pains that doesn’t go away even after the medication course. I really torn right now if I should stop without my dermatologist knowing or continue taking them. It’s really hard to have acne for the whole time of my adult life but I also don’t want to risk my overall health. It’s really frustrating. 😭
Hi Annie, my apologies for the late reply. I’ve had a really busy weekend at college and have been catching up on jobs since then. I’m really sorry that you’re having these symptoms and that you’re feeling anxious regarding your decision to continue/ discontinue your Accutane course. I won’t advise you one way or another as I feel it’s a personal decision that needs to be made by you at the end of the day. However, based on my personal experience with this drug, I would highly encourage you to continue researching. Clear skin is not worth the potential long term health implications. I have a few posts detailing my experience with Accutane and what I did in order to recover. If I could go back in time, I would definitely not have gone down this root. Knowing what I know now- I would have worked on my liver health, gut health, thyroid/ adrenals, and reducing stressors such as heavy metals, parasites, EMF’s and blue light. As well as this I would have looked at emotional factors and reduced my stress levels. I know that this would have completely cleared my acne but just like you, back at the time I chose to take it I felt desperate! I promise you there are alternative and more holistic ways to get clear skin. It is completely up to you and I appreciate that it’s not an easy decision to make, especially whilst you are in it. If you would like to chat more my email is firstname.lastname@example.org Wishing you all the best, Becky x
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Hi Becky. Thank you for replying. I hope you’re doing well.
As for me, since last week I’ve still been in a battle with myself trying to decide to stop or continue with this medication. When the time comes that I will take the capsule, I seem to also swallow my arguments to the back of my mind and would think that “I’ll just finish my 2nd month”. But today, my lips had started to crack again and were so painful even when eating. My rash went away over the weekend but now they’re back and I have new ones on my feet. My nose bleed and irritated eyes also seemed to worsen. I came to a decision to stop it today. If I won’t do it today, I might not be able to stop myself from taking them again tomorrow and the next days.
And I’m also thankful for your timely reply. It had given me hope and assurance that I made the right decision. I guess it’s really a different comfort when it comes from people who had been on the same shoes as you. Today I had been on a crying spree. But now, I’ll focus myself more to detoxify my body from all those capsules I’ve taken and maybe slowly will regain my confidence.
Thank you so much Becky. I also wish you better health and all the best, Ann.
Ann, I’m so glad that you have come to this decision yourself. I know it’s really challenging at the moment and am sending you so much love. Please feel free to message me any time ❤️ Also, keep an eye out on the blog as I’ll be posting again soon. If you enjoy the content, you can subscribe. That way you’ll never miss a post 🙂 Wishing you the very best health, Becky x